So much has happened since I last posted a diary about this situation back in January it is hard to even know where to begin. I guess the medical situation would be the most obvious. LOL After spending two weeks numb and tingling and in total fear of finding out I had MS, I went back to se the neurologist at Brackenridge. I saw a different doctor and he was stunned I had even been released from the hospital. MS had been ruled out completely. He admitted me the next day and the many test began again as well as high dosages of prednisone under supervision. Yet another dreaded MRI was ordered. Believe me when I say I was well medicated for that one. They started with a mild sedative and less than half way through I started moving again. When I heard the voice saying stay still, I announced quite loudly that the tech could either sedate me or start over. As it was 11:30 pm, I was pulled out, given another shot that sent me to the moon and placed back in the tube. LOL I barely remember being rolled back to my room or stumbling down stairs for a smoke afterward. I am a hard headed cuss at times.
Cross posted @ Doing My Part For The Left, Texas Kaos,Daily Kos
Imagine my complete surprise when my neurologist arrived in my hospital room at 9 am on a Saturday morning. Dr. Perurena said good morning and started in on why he was there. ” Mr. Whichard, you need surgery as soon as possible to keep you from being paralyzed. ” I like blunt and honest but he scared the bejesus out of me. I accepted his diagnosis and started to worry immediately. Next thing I know there is a knock on my door and Dr. Tamu, a neuro surgeon enters my room. After introducing himself he explained that the only reason I was not going into surgery immediately was that he could not get the team he wanted together until Monday. I would have surgery around 6 am on Monday to keep me from being paralyzed from the neck down. It turned out my spine was compressing and cutting through my spinal cord and that was what was causing the numbness over 80% of my body. He tried to explain what would be happening but I was so freaked out and still groggy that I just said explain it after surgery and I will sign anything you want me to sign. LOL
Needless to say, I spent most of the day calling people in between naps. There is something about a hospital that puts me to sleep. It might be the constant drone of noise or just that I was not having to deal with the noise level at the homeless shelter or it could be that fear knocks me out. All I know is that some of the best sleep I had during my time in the homeless shelter came while in the hospital.
Monday morning came all to quickly and I was wheeled out to surgery prep around 6 am. They explained they wanted me to breath a numbing gas for my throat and then would insert a tub and give me a shot when I started gagging- who were they kidding? When they gave me the nebulizer it reminded me of hash pipes from my youth. LOL I took 3 big hits and promptly passed out. I remember nothing about a tube, being rolled into surgery or even the recovery room. I finally woke up as I was being rolled back into my room and saw a friend of mine sitting there. I saw Boadicea sitting there and asked wasn’t I suppose to have surgery and heard a voice behind me say “You already have”. I asked ” who are you?” ” Your nurse. We talked in recovery.” I was a little freaked out as I remembered nothing of this but I guess the pain killers were working. I promptly grabbed my cell phone and started calling everyone to let them know I had made it through surgery okay. When I called Robert Andrews, he wanted to know if Boadicea was still there and when I said yes he asked to speak with her. Boadicea hung up the phone and said Robert and she decided I needed to rest. LOL
My stay at the hospital was uneventful except me scaring the nurse by disappearing for cig breaks. LOL The surgery was a complete success as I was not paralyzed. The numbness had not dissipated but was no worse as long as I took the medication prescribed. The neurology department and even my surgeon lied to me and said the numbness and nerve damage would get better until sometime in May. I was then informed that the nerve damage was permanent and I would be taking medicine and walking with a cane for the rest of my life. Life went back to normal or as normal as it could at the shelter. I now had day sleep so I had a safe place to recuperate until 2:45 pm each day when I was forced to go downstairs and even outside at 5:30 pm each day to wait in line to get back in. Saturdays and Sundays I was forced outside at 4pm. I started going to the library and concentrating on other things as I learned to deal with walking with a cane or at least thought I had.
Taking long walks and getting away by myself became a major part of each day. I was tired but determined not to be down. I was furious when I found out the nerve damage was permanent but determined to get through it as I always had any problem. I would keep pushing until I could deal with it. I guess my coping mechanism was about as good as it had been in my past and that is why on June 26 I took 30 days worth of gabapentin in 45 minutes. I woke up on a bench in front of the main library and called EMS as I did not want to die even though I had taken all the pills. The stress of the situation along with other things in my life had pushed me over the edge and I had tried to kill myself yet again. Depression is a real sickness and can be deadly if not treated with medication and counseling. Being a considerable actor I had said what was expected in counseling session and not told the truth. I was aching inside and fighting being handicapped with every fiber of my being. The thought that I was never going to get better drove me over the edge to suicide.
I spent the entire weekend in lock down on the 7th floor at Brackenridge Hospital. That is the psych ward. I had a sitter the entire time who was in the room with me to make sure I came out of the restroom on time, didn’t try to hurl myself out the window that wouldn’t open or cut my veins with the butter knife on my dinner tray. After this disturbing weekend of being treated as a child and seeing the hurt look on people’s faces as I railed at them for no reason, I came to my senses as they were and started fighting to stay alive. The demon I had to fight was in me and not anywhere else. I had to accept that I was handicapped or challenged but that I could over come the odds and lead a normal life. It might not be as I wanted but it would be a good life. It is a struggle I still deal with at times but never to the extent I did on that dreadful night I tried to end it all.
Look for the next installment that will deal with my homelessness and my getting my on place. I thought a description of my medical and mental state was important for those who know me and as a cathartic exercise for me.
No wonder we haven’t heard from you for a while. That’s quite a health challenge you’ve had. Let’s hope the worst is over. I wouldn’t rule out further improvement based solely on what the Dr.s tell you. All my life I’ve heard anecdotal stories of people who surpassed Dr.s predictions on stuff like that.
One thing’s for sure, ain’t nothin’ wrong with your brain! You’re an excellent writer. I’d be first in line for whatever you may decide to publish, down the trial a piece.
Thank you!!! I have not given up and plan to keep fighting.
Well, I’m just glad you’re still around and able to talk about it! You have many friends here pulling for you. Please keep on writing whenever you can.
Thank you so much!!! Another diary dealing with the housing will be coming soon.
My cyber family here means a lot to me and has been a strong source of love and support through all the hard times.
You know I’m always amazed at your strength and ability to laugh at life, even through the tears. You’ll get better and stronger, I know it.
Thank you sweetheart!!!!The love of my friends near and far as well as my family keep me going. I am finally starting to believe in myself and fight for my own right to live and be happy.
Which I snagged from his Facebook page:)
Updated Wish List for the Apartment
Share
Saturday, 10 October 2009 at 11:53
I did a wish list for the apartment back in August and now need to update it. People have been so kind and generous and I appreciate all they have done for me. I still need to find someone who wants to go to the Ikea store in the area so I can redeem a wonderful gift certificate one of my angels sent me.
You can view the old wish list at http://www.facebook.com/home.php#/note.php?note_id=99711342710. It has been updated some and there is a link http://yourweddingpresents.com/ in the notes to an on line gift registery where some of the dream items for the place are listed. LOL Of course you can pass this on to anyone who might be able to help with anything listed. Used is fine by me except mayne for the toilet bowl brush. LOL
gift cards are a great option!
Thanks for posting this for me. You know I have problems asking for help as so many have done so much already.
Hi refinish, so glad to hear from you. I never quite know what to write but am glad to know you are still here. Being permanently disabled is no picnic(I know I’m disabled)and no matter what doctors say everyone heals or progresses on their own, at their own pace. I hope we will hear from you again.
Thank you. I know I am not alone in facing challenges. I look at so many people I know who are also diabled in one way or another and take a form of comfort that I am in such an illustrious group. I have some strong role models to prove I can deal with this and have so many people who care for me on a personal way. I am finally learning to care about me also. It has been a long road but as the quote says “What Doesn’t Kill Us Makes Us Stronger.” I am getting stronger everyday.